Trust

When I wrote about internal locked rooms earlier in the month, I had no idea how much there would be to unpack. In subsequent discussions about locked rooms and unconditional love (for a connect-the-dots map go here) a friend tells me she believes trusting herself is the biggest barrier for her in unconditionally loving herself. Me being me, I asked her how we define trust. In asking her I asked myself.

Photo by Jonathan Simcoe on Unsplash

Here we go again.

Trust is defined by Online Oxford Dictionary as “firm belief in the reliability, truth, ability, or strength of someone or something.”

Trust is a tricky subject for me and I’ve so far avoided taking it head on, but this feels like the right time. Part of my hesitation to talk about it is my own identity as a person who doesn’t trust easily.

I feel that piece of identity as a shameful aspect of my character. As I write this, I have a vivid childhood memory of being in the back of a dim car in a blinding snowstorm feeling scared. An adult in the car was also fearful, as were the family dogs. The driver asked me, “What’s the matter, don’t you trust me?”

The answer clamored inside the car, “NO!” For a moment it seemed to me we’d all shouted it, though nobody said a word and I huddled, frozen with fear and not daring to speak, in my corner.

It’s bad not to trust; disloyal, unloving, unnatural. But I learned very young trusting those around me was dangerous. All my life I’ve been torn between my shame about not trusting and a determination to survive and learn to self-defend … which sometimes (often?) means not trusting.

I don’t see trust as a black-and-white belief. I might trust someone completely with money and business affairs, but not at all as a confidant. I might trust someone as a parent but not as a dog walker. I might trust someone’s essential goodness but not their reliability in following through on plans.

This question of trusting ourselves, though, is slightly different. What does it mean, exactly, to not trust ourselves? What do I mean when I say it to myself?

Trust is defined as a belief, and beliefs can and do change. Belief is a choice. My belief that I’m untrustworthy is not something I was born with, but something I internalized from my family. I’m untrustworthy because I’m dramatic, I struggle with math story problems, I have needs and feelings, I’m intuitive, I’m sensitive, I have boundaries, I challenge authority and rules, and I tell the truth, among many other reasons.

Internalized voices are a bitch, because we don’t realize or remember they came from someone outside us.

And people outside us lie. People outside us can never fully see what’s inside us. People have agendas, their own wounds and trauma, and navigate around their own internalized bullshit.

Photo by Cristian Newman on Unsplash

People outside us are not necessarily reliable sources about our worth and value as a human being.

If trust is a “firm belief in the reliability, truth, ability, or strength of someone or something,” we have specifics we can explore.

Reliability: I know myself to be reliable. I have many flaws, but my integrity is strong and I keep my word to myself.

Truth: A thorny aspect of trust. I wrote two paragraphs here about the ways in which others perceive my truthfulness. On edit, I realized none of that has to do with my truthfulness with myself, which will always be invisible to the outside world. Do I trust my truthfulness with myself? Yes. Absolutely.

Ability: This is my weakest area of self-trust. In some ways. At some times. I wrestle every day with imposter syndrome. On the other hand, I absolutely trust my ability to write, to teach, to swim, to dance, and to do many other things. Oddly, though I trust my ability in most cases, I don’t want others to trust my ability because I have a huge fear of disappointing people. This, too, is an old wound, first opened when I received constant messaging about how disappointing and inadequate I was as a child. Because of that, I don’t want people to rely on me for fear I’ll let them down, not from my perspective, but from theirs.

I told you trust was tricky for me.

Strength: Which brings me to strength. This, for me, is a no-brainer. I have absolute belief in my own strength. God knows I wouldn’t be sitting here at the keyboard typing if I hadn’t been strong all my life.

Given this mostly positive review of the components of this definition of trust, what’s the problem? Why have I so consistently mistrusted myself during my lifetime?

I can easily come up with two reasons. There may be more lurking in the background, but these two are in front: One is trust in my physical body, and the other is perfectionism.

Perfectionism is one of the first things I wrote about on this blog. It’s another piece from my childhood I’ve struggled with it all my life, and I’m certainly not the only one. I’m conscious of it now, which is helpful, but it affects every day of my life and if I’m not mindful it rules me. Publishing this blog was one of my first real efforts at resistance. It took more than a year of weekly publishing to stop feeling panic as I pushed the “publish” button after a reasonable amount of writing and editing.

Even as perfectionism drives me, I’m aware enough to know I can’t define it beyond pleasing people. Which is impossible, and I know that. Yet the internal pressure to be perfect seems to be inescapable.

I’ve also written extensively about expectations. As a child, I was expected to be perfect according to conflicting expectations from three adults on whom I was dependent. Needless to say I failed to please any of them, which meant I lived in a constant state of shame and fear of abandonment. A perfect setup for internalized self-loathing. The road from self-loathing to considering unconditional self-love has been an amazing journey.

I was aware, as I explored ability, reliability, truth, and strength above, of a little voice in my head saying, “Yes, but—,” a precursor to the time I was late, or forgot an appointment, or the occasions I did deliberately lie, or the times I felt weak, or when my ability did not live up to my own unconscious standards of perfectionism.

As I became aware of this, I realized I will never trust myself if I aspire to be perfect in these four categories. I have never been perfect, I am not perfect, I never will be perfect, and I’m not much interested at this point in my life in attaining perfection in any way.

So fuck off, perfectionism. I’m not your bitch anymore. AND you will not stop me from loving myself, unconditionally or otherwise. Unconditional love is not built on some ridiculous set of expectations.

Photo by Emma Backer on Unsplash

Which brings me to an interesting insight on my relationship with my body. Let’s not do the body-as-a-political-signal thing, OK? I’m sick of it. We all live in a body. We have baggage about how our bodies look and function. We’re pressured, every day, to try to buy a “better” body, especially children. In today’s world, many of us feel we “should” be different, no matter what we look like. Currently, we’re obsessed with appearance and virtue signaling rather than health and function.

I don’t hate my body. However, due to autoimmune issues and years of chronic pain, I haven’t trusted it. Until the last ten years or so, since I’ve gone carnivore, my physical state was extremely limiting; I was unable to engage fully in activities I loved, get regular exercise, or even reliably manage the activities of daily living without severe pain.

Now I have my inflammation under control, my chronic pain is gone, and I’m able to joyfully live the kind of active lifestyle I’ve always wanted: gardening, walking, swimming, water aerobics, free weights, stretching, a little yoga, a little Pilates, a little time in the gym. I’m healthier and more active than I’ve ever been, but I am aging, and as I age, my body is changing. (Big surprise, I know!) I noticed, in my post about unconditional self-love, some of the things I wrote about unconditionally loving were physical things. In this culture, nobody tells us to love our varicose veins, or our age-spotted hands, or our lined neck. Instead, we’re encouraged to buy something and “fix” all those problems, or at least hide them.

That’s not unconditional love. (I also deny it’s “body positivity,” but I don’t want to dive into that rabbit hole!)

I know if I push myself too hard my body will hurt. I know if I allow my anxiety to spin out of control I won’t sleep. I know if I eat a whole pizza I will a) have inflammation and pain from the carbs and b) have severe constipation (cheese). I know if I garden for too many hours at a time I’ll be too stiff the next morning to get dressed without sitting down. I know if I spend too many hours in the pool I’ll develop eczema on my elbows and hips.

Photo by Cristian Newman on Unsplash

I ask myself, does all this mean I don’t trust my body? Because it actually sounds like I do trust it to react to my choices in various predictable ways. Is what I’m really saying I don’t trust my body to be a 20-year-old perfect body?

Well …. Yeah. I guess that is what I’m saying. Pretty silly.

My friend doesn’t feel she can unconditionally love herself without trusting herself. She’ll navigate her own path through all this. My own conclusion is I can trust myself. Perhaps I should consciously start doing so. (What an idea!) For me, lack of self-trust is not an obstacle to unconditional love, but it certainly makes a nice contribution to it.

Questions:

  • Do you see trust as essential to unconditional love?
  • Do you agree with this definition of trust? If not, how would you define it? Can you find a better definition?
  • What aspect of trust in this definition do you struggle with the most?

Leave a comment below!

To read my fiction, serially published free every week, go here:

The Locked Room 2: Everything I Am and Nothing I’m Not

I’m still looking at my locked room, which I wrote about in my last post. I’ve had some interesting conversations about that post.

My emotional intelligence coach (who has now retired) used a phrase years ago when I was working formally with him: “I want everything you are and nothing you are not.”

It touched a deep, lifelong longing in me to be loved, accepted, seen in my entirety, though I know I would never allow myself to be seen in my entirety.

Through the years since, I’ve carried that phrase with me as I love and interact with those around me. Depending on my mood, it’s a ridiculous, impossible-to-achieve sentiment for any human being, cruel in its false hope, akin to rom coms. Or it’s something to aspire to, a reminder to be softer with my rigidities and expectations, quicker to forgive.

As I wrote a couple of weeks ago about locked internal rooms, it suddenly struck me in all the years I’ve been thinking about that phrase I never once said it to myself. I’ve been focused on my grief and shame about never being good enough to find that kind of love from another human being, or on my suspicion that none of us can honestly say that to one another. Not day after day in the long term.

Photo by Ryan Moreno on Unsplash

Over the last decade or so I’ve slowly, agonizingly, stopped hoping a prince on a white horse would show up who would love everything I am, or even love part of what I am unconditionally. (But, honestly, I wanted him to love everything!) I’ve turned more and more towards meeting my own needs for intimacy and connection, realizing the pain of disconnect is from within myself, not external. I want unconditional love. It’s not a feeling I have any power to make others feel.

Unconditional love towards myself, however, is a minute-by-minute challenge in which I have all the power.

Now, that’s a thought.

Extending unconditional love to myself is hard. I would a thousand times rather love someone else and dream of Mr. Right, except I know how that ends … and frankly, I’m bored with it. In fact, it occurred to me a couple of days ago I’m really not interested in Mr. Right anymore. Or Mr. Wrong. Or Mr. Anybody, romantically speaking. I’ve been smiling about that realization ever since. It’s oddly freeing. I watch women in my age cohort with their husbands/significant others where I work in a pool rehab center and think, “Better you than me, sister!” And smile some more. An enigmatic lifeguard smile (I hope).

The whole idea of romance doesn’t fascinate me anymore unless it’s strictly fantasy. Repairing and healing my relationship with myself is far more interesting. This refocus may be the greatest gift of menopause. I know some women grieve over it, but for me it’s freedom from what was frequently an overwhelming, stressful, and complicated biological imperative. Whew.

Is it possible for us to love ourselves unconditionally? Is it possible for me to do so?

What a question! A question leading straight back to my locked room.

Photo by John Salvino on Unsplash

I can’t love everything I am and nothing I’m not if I don’t know everything I am. If I don’t want to know. If I refuse to find out.

(Item: in my last Tarot spread for Imbolc I drew the Sea: Plumbing the Depths card.)

Now, like all of us, I have acceptable (to me) qualities and traits and unacceptable ones. I’m a mishmash of genetic inheritance and learned behavior. I’m a hot mess and I’m reasonably competent and effective. Sometimes all at the same time!

And I’m supposed to unconditionally love that?

Well, yes. That’s what unconditional love is, right?

I have a varicose vein popping up. I’m deeply insulted. WTF? I’m supposed to love that? I’m supposed to love the genetic inheritance/sun exposure/years of chronic pain that caused me to be sedentary/and other factors in the tired, bulging, blue-violet vein in my lower leg? What about the foot I’m pretty sure I’m developing a touch of arthritis in? What about my aging neck? What about my age-spotted hands (more sun exposure)?

And that’s just the beginning. I’m supposed to love the roots of my perfectionism, my speeding, my anxiety? Well, not the roots, but the child who was traumatized and developed those mechanisms to survive? (And did survive, let’s not forget.)

Romantically speaking, it’s easy to love white horses, roses, diamonds, champagne, sexy exotic vacations (none of which I find especially romantic, but you know what I mean!). I can love my competence, doggedness, creativity, integrity, ability to support others, and many other fine qualities (if I do say so myself). But the aches and pains, sleepless nights, endless loops of anxiety, tendency toward depression, rigidity, fawning, inept healthy boundaries and self-advocating – these are not lovable. These are a pain in the ass.

I am a frequent pain in my own ass.

Can anyone relate?

As for mistakes (I turned out the ladies’ locker room light while someone was still in there last week when we closed the pool!), shameful thoughts and feelings, dire deeds I wish I could forget, habitual catastrophizing, hurt I’ve inflicted on others, parenting mistakes, and a host of other miserable dead bodies in my locked room, unconditional love means I love those, too. It means I love my fallible, aging, flawed, exceedingly human self. All of it. All of me.

Photo by Cristian Newman on Unsplash

It makes me want to permanently lose the keys to my locked room.

Then there’s the “nothing I am not” part of the equation. Boundaries again. I’m so tired of working on boundaries. On the other hand, having no boundaries makes life not worth living, so I persevere. “Nothing I am not” includes what I was taught about myself and my role in my family as a child; false and limiting beliefs; my endlessly carping, nitpicking, internal critic; fear; despair; depression; anxiety; etc., etc. We carry so many burdens, and many of them never belonged to us in the first place. We took them upon ourselves, or someone forced them upon us, or we accepted them in order to ‘help’ someone else. Some are simply old coping mechanisms allowing us to survive our hard times but now outdated and useless.

At the end of all this, I wonder if our locked rooms are just another challenge in love. How much of ourselves do we shut away because we can’t love all of what we are, and we’re certain others couldn’t love us if they knew what was behind the door?

In the case of storing experience too horrific to manage, such as deep trauma, grief, or guilt, don’t those feelings need unconditional love most of all? The locked room itself, however we envision it, however we envision its door, is surely deserving of love too. It allows us to continue to function in life in spite of terrible experiences. It gives us respite, a way to pause, a way to give ourselves time to gain distance, wisdom, grow into new skills and learn how to help ourselves if and when we do crack the door open. It allows us to stay safe and sane.

For me, a choice to practice loving everything I am and nothing I’m not means I’ll be opening the door to my locked room and poking around in there. Now I’m curious. Could I at least consider loving what I find?

I’m considering it. Carefully.

Questions:

  • What do you love about yourself?
  • What do you have to do, be, or stop doing to earn your own love?
  • Do you think more about finding someone to love you or practicing self-love?
  • What if finding “true love” is impossible unless we love ourselves fully first?

Leave a comment below!

To read my fiction, serially published free every week, go here:

 

Simplicity

I’ve been resting in this pause between solstice and the new year. Although I made a conscious choice to set aside everything I could, it was uncomfortable to let this blog lie fallow. On the other hand, I have not been inspired to do much more than manage day-to-day life.

I’m grateful to have moved into new holiday routines after decades of feeling imprisoned by obligation and duty to my fractured family and making Christmas meaningful and fun for my children. Gone are the days of huge, exhausting meals, tight schedules, trying desperately to please everyone at my own expense, spending much of the holidays in the car traveling between homes, and tired, overstimulated children. Not to mention tired, overstimulated me.

Now I focus on Yule, on the deep, introspective peace of winter and long nights, withdrawing into my cozy home. I engage in rituals I love: candles, simple decorating, making a double batch of Spritz cookies with my cookie press to share, and welcoming the return of the light.

Photo by David Monje on Unsplash

This year we had a tropical storm the week before Christmas with high winds and torrential rains that flooded our town and, indeed, the whole state. We were without power for 48 hours. The lack of electric light (or electric anything else) fit in well with Yule, though we got very cold. We were also trapped; every bridge in the area was closed and the Kennebec River, which winds through our town, rose 30 feet, which is 15 feet above flood stage. Between flooding and downed trees, we were unable to leave our immediate neighborhood. Most businesses closed. The ones that stayed open (with generators) quickly ran out of everything. Our neighbors loaned us a butane camp stove so I could heat water for hot drinks.

As soon as the power was restored I ordered a propane camp stove.

Life rolls along, whether I’m posting or not.

This morning, as I lay in bed waking, I heard snow plows in our neighborhood. We’ve had more rain here, and clearly sometime during the night it had changed to snow. As I moved around the kitchen, watching the sky lighten and the snow fall, cooking breakfast, sipping my first cup of tea, enjoying glowing candles, my thoughts drifted.

Impossible to avoid end-of-year lists and reviews and new year resolutions, hopes and fears this time of year. I generally am uninterested. I’m content to let the old year diminish and recede, particularly this one, which was especially difficult personally. I don’t enjoy new year resolutions, mine or anyone else’s. None of us know what the new year will bring and many of us look ahead with some trepidation and anxiety; I don’t need to exacerbate mine by making or consuming predictions. What will come will come and we’ll have to cope with it.

I will be 60 this month. Impossible. Incredible. For the first time in my life, I’m daunted by a birthday. Generally, I hardly notice them. I’m annoyed by my discomfort this year. I’m determined not to focus on it, but I keep seeing it out of the corner of my eye.

I asked myself a question as I moved around the kitchen this morning. If I could have anything for my birthday, if I could make one intention for the year ahead, what would it be?

It’s easier to think about what we don’t want, isn’t it? I reviewed my current challenges and anxieties, watching the pewter sky and the snow becoming less rain and more flakes as the temperature dropped. I flipped the bacon, gave the cats another half a can of food so they would get out from under my feet. The pipes in the radiators creaked and popped as the furnace turned on.

The word ‘simplicity’ came into my mind. I turned it over. I thought about what brings me joy. I thought about candles, reading a good book, the warmth and weight of a cat in my lap. I thought about a cup of hot tea. I thought about music, the rhythm of swimming, being with people I love and trust. Sitting in my comfortable chair with my weighted blanket, just breathing. Peace. Stillness. Light and shadow. Long nights. My warm bed. Hot showers. Solitude. Privacy. I thought about my current laptop background. A perfect illustration of simplicity:

I thought about what I don’t want. The endless complications of being nice, pleasing others, fawning to stave off violence and pain. Clutter. Bright lights, noise, demands. Busyness. Obligation. Duty. Feeling hounded, imprisoned, criticized, judged by myself and others. Too much talk. Racing the clock.

I thought about boundaries. Inconsistent boundaries, badly maintained, easily breached; and strong, smooth, tough boundaries, well-maintained and consistent. Unapologetic.

I thought about the simplicity of ‘No’ and the complications of ‘No’ followed by five minutes of cringing apology and justification, or the inability to say ‘No’ at all.

‘Simplicity’, I decided, named my longing.

When I consider the first 60 years of my life I mostly see the unending labor and anguish of caring for others, the years of trying and trying, as only a woman who loves can understand, to love them all. To please them. To make them happy and healthy. It was complicated. Noisy. Chaotic. Bloody. Painful. Extremely expensive in terms of my own health and happiness.

And frequently thankless. Rarely reciprocated.

That’s what I thought I was for, to live that way. I was taught that was what I was for.

In the last few months I came across a little mantra which has become something like a prayer permanently nestled in my consciousness:

I am enough.
I choose my life.
I trust myself.

Sixty is a nice, round number. How would it be if I chose to begin again, now, with just myself; my own self-care, which is simple and easy? What if I chose to embrace the discomfort and power of maintaining strong, consistent boundaries and let people react to them however they need to, making their feelings none of my business? What if I stopped apologizing for what I need because it’s not what they need or understand or want?

What if I made up my mind to choose the simplest thing, the most direct, honest answer, the clearest communication in any given situation? What if I stood up for myself the way I stand up so readily for others?

Maybe 60 years of responsibility for everyone around me is enough and I could choose to spend the next 60 years (!) being responsible only for myself.

What a relief!

I don’t tell myself living more simply will be easy. It won’t. Boundaries, (I’m never allowed to forget) are invariably heavily challenged and battered by those who have the most to gain by us having none. Maintaining boundaries means conflict, a thing I dread and have always avoided as much as possible. It means emotional manipulation, the most painful (and successful) weapon those close to me can wield against me. It means Failing To Please. It means controlling my natural empathy, focusing it inward rather than outward, being more present with my own internal state rather than that of others.

Simplicity. What a lovely intention.

Photo by Das Sasha on Unsplash

Here’s a deep winter wish for you all:

May You Grow Still Enough

May you grow still enough to hear the small noises earth makes in preparing for the long sleep of winter, so that you yourself may grow calm and grounded deep within.

May you grow still enough to hear the trickling of water seeping into the ground, so that your soul may be softened and healed, and guided in its flow.

May you grow still enough to hear the splintering of starlight in the winter sky and the roar at earth’s fiery core.

May you grow still enough to hear the stir of a single snowflake in the air, so that your inner silence may turn into hushed expectation.

by Brother David Steindl-Rast

Questions:

  • How did you spend your holidays? Did you spend them the way you wanted to or the way you had to?
  • How do you feel about new year’s resolutions?
  • What single word names your deepest longing?
  • In your view, how do self-care and selfishness differ?

Leave a comment below!

To read my fiction, serially published free every week, go here:

 

 

 

Collaboration

Last week a Substacker I follow, Candace Rose Rardon, illustrated a memory I shared with her. I was absolutely thrilled. The union of my words and her art spoke to one of my core values: collaboration.

Collaboration is about power management. It’s defined as working with someone. Not directing them. Not submitting to them. Working with them. In other words, sharing power – power-with rather than power-over.

Image by Bob Dmyt from Pixabay

Is it just me, or are we as a culture moving away from sharing power rather than toward it?

Collaboration and cooperation lie at the heart of my fiction. All my life I’ve been preoccupied with working together, but I never had adequate language or studied power until I learned emotional intelligence. At that point the light dawned. I reviewed my relationships, both family and otherwise, through the lens of power.

It was a grim review. I set out to reclaim my power.

Let’s be clear: reclamation is not stealing.

I didn’t want to take power away from others. I wanted to reclaim what had been taken from me.

This involved needs, boundary work, and many other moving parts, most of which I’ve written about here over the last seven years (almost exactly seven years … wow), and all of which are woven into my books.

Speaking of my books, I have a dream that one day a visual artist will read my work, become inspired, and want to illustrate it. That’s not all. (Might as well dream big, right?) In the same dream a musician (drums and flute or pipe, at least) reads my work, becomes inspired, and adds music and a soundscape to it. I even dream one day we’ll develop the ability to incorporate scent into reading.

I am a sensual person, and my writing reflects that. I myself see my characters and my world of Webbd vividly, but I’m not an artist. I respond deeply to music physically and emotionally, but I’m not a musician.

In every relationship I’ve sought collaboration. I’ve wanted a safe place to have an authentic voice, express an opinion, make a contribution. I’ve wanted the power to make choices. This has been true in the context of family, friends, spouses and boyfriends, coworkers, and community.

I have not been noticeably successful until the last ten years.

No matter how talented, strong, or knowledgeable we are, healthy collaboration can only make us bigger. Collaboration is tricky, though. It’s messy. We’re forced to deal with conflict, with different visions and voices than our own, different backgrounds, different belief systems, different ways of looking at the world and interacting with life. It’s work. It stretches us uncomfortably. We might have to be wrong (gasp!) and someone might find out we were wrong (horrors!).

Plenty of people say they want to collaborate when their true intention is a hostile takeover. Others seek collaboration as a way to make money or leverage other aspects of social power. Their agenda is to accrue power, not share it.

What Candace Rose Rardon did was extend a gift of generosity. When I sent her my memory I had no power over whether she chose to illustrate it or how she would illustrate it. I handed her my words and went on with life. I had no expectations. She sent back something beautiful woven of my words and her art. I’ve never met her. We exchanged no money. I know very little about her, but I do know this: she’s part of my tribe. She’s a creative collaborator.

Collaboration requires a willingness to be flexible and the willingness to accept someone’s vision regarding our art. As creators, we need to loosen our grip on our masterpieces and allow others to widen us. Perhaps someone else visualizes our character slightly differently than we do. Perhaps they see the character more clearly, or more fully than we can. As collaborators, we may be pushed to do more than we’ve done before, take new risks, try new things. Healthy collaboration makes us all more powerful, more expansive, more interesting, more textured.

We are stronger and more beautiful together than we are apart.

Photo by Helena Lopes on Unsplash

Collaboration is everywhere. It’s the falling rain and early birdsong on a spring morning. It’s the calling of shorebirds against the background of surf. It’s the buzzing of a fat bumblebee in a fragrant blossom. The world is unbelievably sensual. Walking through tall grass this time of year, the stems and heads turning straw-colored, the small scratching prick of grasshopper legs on my bare skin, the scent of warm grass in my nostrils, is a miracle of collaboration. A garden exists because of collaboration between countless forms of life and the weather.

We can’t collaborate in every situation all the time. Leaders lead. Parents parent. Bosses must manage their people, teachers their students. We all have areas in our lives we like to manage solo, including areas in our creative lives. On the other hand, we are seeing the consequences of no collaboration: chaos, fear, hatred, division, destruction, and social breakdown. We are now successfully being manipulated into choosing not to collaborate even with ourselves, but with consumerism, capitalism, and ideology instead.

Collaboration is wide. It’s not only about human-to-human interaction. If we don’t figure out how to collaborate with our planet, with the human and non-human life around us, and (perhaps most importantly) with ourselves, we will not thrive. We’ll solve no problems. Nothing will change. We’ll meet challenges as individuals and as communities and countries poorly. We will keep ourselves small, disorganized, and weak.

Or we can choose to combine our knowledge, our skills, our vision, and our humanity.

Questions:

  • How have you collaborated successfully with others?
  • How have you struggled with collaboration?
  • What’s the hardest thing for you about sharing power with another?
  • Are you open to collaboration? Why or why not?

Leave a comment below!

To read my fiction, serially published free every week, go here:

The Feeling of Dementia

In January, my brother and I traveled to Colorado to transition our mother into memory care.

As some of you know and many can imagine, a journey into dementia is an unsettling one on good days, by which I mean relatively calm days. On bad days, days of panic and confusion, days of anger and restlessness, it’s heartbreaking.

One of the greatest challenges for me is the chaos of my jostling feelings, all mobbed together and struggling for attention. I can’t feel everything at once, and I can’t focus on one thing at a time. One minute I’m entirely relieved because I know she’s in a safe, protected environment being well cared for, which has not been the case for the last ten years. Knowing she was living alone, driving, walking her dogs, and slowly losing her ability to function and manage her own life and I could do nothing about it took a daily toll.

Photo by Cristian Newman on Unsplash

The next minute empathy and compassion overwhelm me and I’m reminding myself to maintain boundaries. She is not me. I am not her. My attention needs to be on taking care of my own feelings. If I could have effectively helped and supported her, I would have started doing it when I was five years old. I never found a way because there is no way.

Then I’m angry. Angry because I tried to avoid this particular outcome. Angry because she wouldn’t help herself when she had the ability to. Angry because I’m still in the position of parenting and taking care of my parent, which has always been the case. Angry about her suffering and confusion, and mine.

At the end of every conversation we have on the phone, I tell her I love her. It’s true. I have always loved her, but was not allowed to say so. She would ignore such a statement, or dispute it. She says it back to me now. It always makes me a little bit mad. It was a thing she would not say outright before. She’d sign herself “Love, Mom,” but she wouldn’t say it. She’s not a person who offers or accepts any kind of touch. Does she really love me, or is she merely participating in the familiar ritual of the exchange? Did she feel it all along but couldn’t say it?

Even before her dementia onset, Mom wouldn’t have answered these questions. I will never know.

I’m also sad. It’s not a sobbing, tearing grief, but a gentle, diffuse one, like watching a teabag steep in hot water and gradually turn it into tea. I don’t feel it all the time. There’s resignation in it, and acceptance, and surrender.

Mom is receiving palliative care under a local hospice organization. They recommended a book to me, titled The 36-Hour Day, by Mace and Rabins. I bought a copy. It was hard to read because it stirred up uncomfortable feelings, but it’s also a goldmine of information, including the latest research and standards for dementia care. It’s enormously validating. I read about specific behaviors and the stages of dementia and realize I have been struggling with Mom’s gradual disintegration for years. Nobody else saw it, so I was alone with my fears and concerns, but I knew she was slipping and I suspected this time was coming.

What I was most hoping for from the book was a script for dealing with difficult questions and conversations. I have some professional experience with dementia and am comfortable with refraining from using logic or trying to bring anyone back to reality. Mom has always believed entirely in her narratives, which often were distorted, paranoid, and inaccurate, so I have a long and painful history of managing her stories and beliefs. However, now the briefest conversation is fraught with pitfalls I don’t know how to respond to or address. I spend a lot of time on pause, frantically trying to figure out the best way to engage with her.

Photo by Quino Al on Unsplash

The book didn’t give me a script, per se. What it gave me was a simple strategy for everything: reflect and validate feelings. Not the stories (thoughts), but the feelings. Emotional intelligence strikes again.

This was good news for me because I’m highly emotionally intelligent, even in this difficult personal context. I know how to recognize, name, and manage feelings. On the other hand, it seems like so little to offer. It’s hard to provide comfort in the context of dementia. Language feels pointless. Nonverbal communication is useless over a long distance and, in this case, in person. Mom has flinched away from me too many times for me to even think about touching her. On the phone, all I have is language. Following my impulse to reassure, to explain, to provide some kind of structure, only makes things worse for both of us. I measure my effectiveness by the level of her distress, which is eerily like measuring my effectiveness by the degree to which I can please her. Even that may not be accurate. Mom’s distress has always been extreme in the face of boundaries, limitations, the word “no,” and any questioning of her particular narratives and beliefs. It’s a personality trait having nothing to do with me personally. The mere fact of her feeling confined (which is accurate) may be the root of her distress rather than anything I’m saying or doing. Or not saying or not doing.

It occurs to me feelings live inside the just-born infant. Maybe before that. Certainly, we experience feelings long before we master language. I’m realizing intellect, logic, language, can all fall away at the end of life, too, but the feelings remain. I assume our need to be heard and validated remains.

Conversation with Mom is like wandering blind through a meadow filled with rabbit holes. Dementia is at once simple and extremely complicated. I never know how she will be or what she will say next. Sometimes she sounds down and depressed. Sometimes cheerful. Sometimes calm. Once she even told me she was “content,” a word I’ve never associated with her before. Sometimes she’s anxious, sometimes angry, sometimes groggy and hardly responsive.

When we talk, I work to set aside (temporarily) my own feelings, thoughts, memories, expectations, and predictions. I ask her how she is and listen to her response, looking for the feelings. When she tells me she needs to leave there because “everybody steals,” I sidestep the stealing accusations and acknowledge it must be an uncomfortable and discouraging way to live, and I can understand why she doesn’t like it. She perseverates on this theme off and on, and I enlarge on how difficult the feeling of losing things is, how unsettling to not be able to find our possessions. After all, she’s lost her whole previous life. Her feeling of loss, of things missing, is based in reality. On the other hand, her paranoia and fear of people (including me) stealing money from her was in place long before her dementia. I was never able to persuade her they did not reflect reality. I certainly can’t do it now.

Reflecting and validating her feelings back to her feels inadequate. It even feels condescending. But there’s nothing else I can do, nothing else to say. Witnessing her feelings is all I have left.

And, after all, maybe that’s a lot. We’re not very skilled with feelings in this culture. It’s not easy to find someone who will just listen without trying to fix or solve. Perhaps great healing lies in being heard with nothing added. I hope so.

Another constant theme is one of buying a car and going shopping when we visit. When I ask her what she needs, she can’t tell me. She needs “things.” When I ask her if she’s started a list, she never has. We are not sure she can read or write anymore. I realized when we went out to move her and worked in her house she’s a shopper. She has enough clothing for three women. Her closets were filled with shoes, both old and worn and newer. She had six or seven open bottles and jars of the same products. Her cupboards were packed with supplements and vitamins for both herself and the animals, many of them outdated. As her confusion grew, it appears she self-soothed by shopping and receiving packages in the mail. So, we talk about how much fun it is to take a day and shop for this, for that. We talk about having new things, buying special gifts for ourselves. She doesn’t want to make a list and have someone else get her what she needs. She wants to go on her own and play, buy what she wants, choose what she wants. She wants to feel free, independent, and empowered to give herself that.

She cannot understand that’s no longer possible. Even if she could, the feeling of wanting what she once had would likely persist. It breaks my heart.

Photo by Gemma Chua Tran on Unsplash

I have feelings, too. I turn to journaling, to writing. I’ve tried without success to find support groups in my area; then I found a mental health professional experienced in family trauma to speak with. I talk with Mom’s hospice team regularly; having worked for hospice, I know they want to support the whole family system. I extend to myself all the gentleness, support, and patience I extend to Mom. I hold my thoughts loosely and hug my feelings. They need comfort. They need expression. I think about boundaries and regulate my empathy. I’m newly appreciative of my own freedom and independence. I look for reasons to laugh, reasons to smile. I look for ways to connect to others. I intend to learn to receive as well as I give.

As I write this, an exuberant spring wind blows outside, pushing snow off roofs, tangling our wind chimes, shaking the lilac branches with their new, hard buds. One of the cats is stretched out on my desk in the sun. My desk calendar was in his way, so he kicked it off with his back feet. A glass paperweight pins down a card for Mom, the envelope addressed and stamped. Every Monday I put a card in the mail for her. I do it for me. She does not acknowledge them or remember receiving them. I hope they’re all displayed in her room, but I don’t know. I’m not sure she can read them. I imagine a staff person or hospice team member reading them to her. I’m not sure she can connect them with me at all. But it makes me feel better to make the gesture, and I enjoy picking out cards I think she’ll like. I’ll write a couple of lines about the weather, about the moment, about spring. I’ll sign it with the word love. I’ll put it in the mailbox and raise the flag, and the mail carrier will take it in an hour or so.

Feelings are pure. Feelings are simple. It’s our thoughts about our feelings that fester, tangle, entrap us. I want to soothe uncomfortable feelings, make the pain stop, dry the tears, turn aside the rage. All my life it’s been my role to take care of Mom, fix whatever was going wrong. I still feel her emotional dependence. I still feel the responsibility to solve every problem for her.

But Mom has traveled now to a place I can’t go and she can’t come back from. She can’t follow me, clutching at my clothing, needing, wanting, pleading, demanding, rejecting. I can’t walk beside her in a way she recognizes. We have separated. I am relieved. I am absolved. I grieve for her anguish. Witnessing her feelings without taking action to assuage them is perhaps the hardest thing I’ve ever done in a lifetime of hard things in caring for her.

But I cannot fix this. Neither of us can go back. There’s only feeling our way forward.

Questions:

  • What has been you experience, if any, with dementia in a loved one or family member?
  • What are your thoughts and feelings about hospice care?
  • What’s the hardest thing for you in supporting an elderly loved one?
  • Do you worry about developing dementia yourself? Have you made a plan?

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