Communication

Last week, my partner and I went to the movies and saw Arrival. Without giving any spoilers, I found it a stunning story about communication, among other things. It was the communication piece that really grabbed my attention, though.

Photo by Jason Rosewell on Unsplash

Ever since then, I’ve been thinking in a newly focused and intentional way about communication — what it means, how it looks, where it breaks down and how to do it well.

The truth is, I don’t want to know how to do it well. I want to know how to do it perfectly.

Another truth is I’m always thinking about communication, because I’m always working on my book, on this blog or on relationships, and they all involve communication. My partner says there is no relationship without communication, and I think he’s right.

As regular readers know I am wont to do, I pulled out my Random House Collegiate Dictionary to give myself a starting place. Anyone who’s used a dictionary knows there are often multiple meanings for any given word, so I made a list of the definitions I liked, cut and pasted a little, and came up with this (emphasis is mine):

Communication:

  • To give or interchange information to/with one another.
  • To express one’s true thoughts, feelings and moods easily.
  • To have or form a connecting passage.

Although I’m intellectually satisfied with this definition, it feels incomplete and inadequate. In fact, it makes me mad. If only effective communication was this easy and simple! Instead, it seems to be one of the most desperately difficult things we do, and we must communicate if we are to manage life in today’s world.

Photo by Bewakoof.com Official on Unsplash

How many ways does communication break down for us in a day? Are we even aware of all the ways it breaks down? How often are we communicating something completely unintentional?

At the same time, have we ever, in the history of humankind, had so many devices and forms of communication at our disposal? Have we ever had access to so much information and so many other people?

So why aren’t we happier, more authentic, more secure and sure of our worth? Why are so many of us starving for healthy, fulfilling connection? What’s missing?

If I knew, I would fix it in my relationships, but therein lies one of the problems.

This is the part that always sneaks up and bites me in the ass.

Photo by Toa Heftiba on Unsplash

Not everyone wants the level and quality of communication I do. Generally, I don’t take this cold little fact personally, but among my nearest and dearest it does feel personal, absolutely. I feel utterly and completely rejected and shut out, in fact.

Another problem is that not everyone is capable of the level and quality of communication I am. Many people carry terrible damage or experience disability that prevents them from being able to participate in touch, in sex, in eye contact and nonverbal cues, even in conversation. I can tell you from personal experience it can be very, very difficult to sort out those who want to and are unable to from those who simply don’t want to. In the end, it doesn’t matter, it all comes to the same thing. When communication is limited, relationship is limited.

Limitation frustrates me, whether it’s my own or imposed by others. I can do more. I want to do more.

A third issue is that communication is two-edged. It’s an enormously powerful skill and ability, both constructively and destructively. We all know people who use communication as a weapon, not a tool. Sometimes, a simple, ominous clearing of the throat can be far more terrifying and damaging than a blow. Both actions are communication. Even worse are people who deploy words saying one thing and demonstrate action that says another, like the abuser who says he loves you while he hits you. This is called gaslighting, and I’ll write about it in the future. It needs a post all its own.

A fourth point is we don’t have enough silence in the world. Silence is the cup that holds communication. It takes time to write, to create, to speak, to hug, to make love, to nurse an infant. It takes time to nurture a friendship, a lover, a child. Sitting with the ill or dying takes time and quiet. Listening takes time and presence. Our slavery to technology and stimulation has all but eliminated uninterrupted time for our relationships with ourselves, let alone with others.

And that brings up a fifth aspect. If we don’t, won’t or can’t communicate effectively and honestly about who we are, what we need and want and the truth of our thoughts and feelings, we can’t form a connecting passage, to quote the above definition. We’re not even connected to ourselves.

As though all those things didn’t make communication a big enough hairball, we have to remember who we are. We’re human, which is to say each one of us carries stories, beliefs, expectations, memories, scars and bleeding wounds that get in our way every time we communicate, even with (especially with) those we care deeply about. We all have painful triggers. We all get hijacked. We make assumptions. We misunderstand, deny, obfuscate, conceal. We filter through our particular history and experience. Few of us have any training in effective communication. We can tweet or text a sentence or two, but ask us to do more and we’re at a loss. For one thing, we don’t have time to deal with it.

We also have rules about communication, individual rules, tribal rules, cultural rules. We have rules about acceptable language, rules about keeping secrets, rules about being indirect, rules about protecting others, rules about loyalty and duty, rules about privacy, rules about what we’re willing to reveal to whom, rules about who we trust and don’t.

Even the words we choose can make or break communication. Here’s an example out of my own life I’m feeling particularly resentful about at the moment.

I’m a woman, a partner, a sister, a daughter and a mother. I love wholeheartedly and I’m very clear about how important healthy relationship is to me. I know the people I love well, and I try hard to accommodate their personalities, preferences and idiosyncrasies. I’m not Miss Fixit. I’ve no investment in protecting people, and the four men in the world who I love most are unbelievably capable and intelligent adults.

When I say, “What can I do to help? “Is there anything I can do to help?” or “Is there anything I can do for you today?” I’m not implying they can’t manage their lives, dammit! I’m giving a message of love. I’m saying, “I’m here. You matter to me. I’m glad to lend you support. I’d love to collaborate/cooperate/work with you.” I’m making a connection. I’m giving what I most want. Catch me being insulted if someone asks if they can help me figure out how to run the errands, take care of work and cook a meal!

My male partner says, with great patience, that I should use the word “assist” instead of help.

Seriously???? These four idiot men, who know me better than anyone else, need me to tippy-toe with my language in order to hear a message of love and support?

Never mind. I’m over it. Figure out your own damn life, and I’ll figure out mine.

Furthermore, catch me allowing any of them to help me, even though I know that’s connecting for them. They don’t need anything from me, I don’t need anything from them.

See how that breaks down?

And half of that is about me. I’ve been taught to be indirect in my language, I’m giving others what I want myself (this never works well, because the recipient rarely understands that’s what I’m doing), I’m coming across as relentlessly mumsy-wumsy and overprotective, and I’m assuming these four men are like me and won’t ask for help if they need it, but I’m the one who can’t ask for help, and now I’ve fastened myself more firmly in that position because they won’t cooperate with me and allow me to love them, so I’m not going to give them the satisfaction of…

And so on.

My conclusion about all this is that communication among human beings is a clusterfuck. It’s confusing. It’s messy. Most of us don’t know what the hell we’re doing and many of us are not that well intentioned in the first place. We have wildly varying degrees of ability with wildly varying aspects of communication. We try to hide, we misunderstand, we make mistakes, we don’t remember accurately and we’re often terrible at listening. We want to be right, we want to be validated and agreed with, and we want others to meet our needs quickly and perfectly so life feels simple and uncluttered, emotionally, at least.

I’m never going to do it perfectly, and neither is anyone else.

But hey, let me know if I can help you in any way!

Photo by Quino Al on Unsplash

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Jennifer Rose
except where otherwise noted

Echoes and Ghosts

For me, February 1st is the first day of spring. I know it’s early. I like it that way. I like the anticipation, the half-intuited first stirring of life under the soil, under last year’s debris, the slow, cold wakening of seeds, stiff in their dormant shells but quickening, murmuring, “Is now the time …?”

The birds are the first harbingers for me. Here, in this place, a small city in central Maine, it’s the crows, the jays, the cardinals, and the little tufted titmice. The crows and jays complain in harsh voices of salt-encrusted pavement, tired snow over lumpy ice, the steely cold. Cardinal pairs flit in my bare, bedraggled forsythia, and visit the feeders, a startling splash of color in the grey and bone landscape.

The titmice sing. Joyful, bursting little songs of nests and eggs, of green growth and warming light. The first spears of bulbs, the budding lilac, the luscious magnolia petals are in their song, though those things are only memories and hopes in the February garden.

(As I edit this, the first goldfinch outside the window.)

(On the morning of the day I publish this, at dawn, the chickadee’s two-note spring call.)

Photo by Ales Krivec on Unsplash

I have been feeling quiet. I’m burning down the last two Yule candles, gradually bringing out those of white and ivory, scented with lavender and herbs. Midwinter festivities are packed away, red table linen and warm-colored throws washed and folded for another season. I’ve been spring cleaning, making glass shine, mopping the scarred old floor, washing cupboards and doors. I walk to and from work bundled up in wool and fleece, the cleats on the bottoms of my boots clicking on the bare pavement and keeping me anchored in the ice and snow. The cold makes my eyes water, my nose run, and my ears hurt. At night, after closing the pools at 6:00, I drop a fluorescent sash around my backpack and chest and hold a small flashlight in the hand closest to the traffic, a white LED light shining ahead, a red flashing light showing from behind.

At times sleep has been thin and wrinkled this winter. In other periods of ebbing sleep I’ve felt frantic and exhausted, but this time I don’t mind. The long cold nights are restful whether I sleep or not, lying comfortable and warm in my chilly room, cocooned in linen sheets and a down comforter. I think of stars overhead, the moon on her path, ebbing and flowing, the tides lapping against the stony coast not so very far away. The hot water pipes in the radiators pop and click reassuringly.

I remember ice skating as a child, gliding smoothly over frost and snow, soaring over magically transformed water, cold biting like the crystalline sound of the sharp-edged skate blades, but warm in body from the rhythmic thrust of my legs. I haven’t skated in more than 50 years, but I remember it now, the freedom, the rhythm, the pleasure, the sense of inconsequence, as though nothing mattered, all was easy and graceful and flowing.

As the old year and winter inch over thresholds into something new, I am companioned by memories. This time last year is a constant whisper in my mind, because this time last year my mother was dying. I am not preoccupied with any time before that. After a lifetime of striving to understand and repair family history and relationships, I have surrendered to what was and what is now over. My battered empathy lies tranquil, not ravaged and torn but manageable, docile, turning over the pieces of last year with gentle intention.

In the clarity of cold winter, in my internal peace, I am alive, aware, receptive in new ways. I learned much in the last year, but intellectually. There was not time for more. The intensity of the situation, the constant crises, the long distance management, the anguish, the helplessness, the impossible tasks, the planning, demanded everything I had. I did not have time to process, to think long and deeply. I did not have the strength for it.

But now, now the past year echoes within my bones and flesh and memory. The ghosts of my feelings and experiences are miraculously without anguish, without horror, whispering a half-remembered story from childhood in which everything works out in the end.

Mom herself does not haunt me. She wouldn’t come back to me in any case, but even before that thought has formed I realize she wouldn’t come back to any person. If she is in a place we can call somewhere, she’s with her animals. No one who knew her well or loved her could doubt it. She wouldn’t come back to anyone, not just me. I knew it before, but now I feel it, and the feeling is gliding, no friction, just freedom and clean, cold air. I can picture her face, laughing, joyful, with manes and tails, paws and shining coats, flopping tongues and pricked ears all around her. And I’m happy for her happiness.

A year ago I was home again after my first trip back to Colorado. I wrote on the ice, on the surface of things. I think without that I might not have stayed the course. It was my lifeline. I was surviving.

A year ago I noticed but did not feel the presence of the birds. The first weeks of Spring came and went; I was focused on the next trip to Colorado, on arranging an estate auction, on supporting my brother in finding renters for Mom’s home, on maintaining communication with Mom’s community, her caregivers, and family. I had no attention for anything but calls and texts as her condition and behavior worsened.

I was not here in April when the magnolia tree began to bloom. I did not kneel in the cold mud of the garden, rejoicing in the chilly sun as the bulbs first thrust up through the softening soil. We were dismantling Mom’s life in Colorado, reading the intimate stories of her history, her loneliness, her fear, and her private struggles. Revealing and releasing stories she never meant anyone to know, casting her life’s possessions and debris into the world, one way or another.

My brother was heroic. The community was stalwart. One step at a time, one item at a time, one mile and minute at a time, we got through it. Somehow.

Home again in May, and back to my life, but only in the motions. Some intuition kept my focus narrow, looking only at the next task, the next step. I gave myself time in the garden, time in the sun. I moved my body. I ate, and worked, and showered, and wrote, releasing my razor-sharp feelings and experience gingerly in words, like so many chips of ice. Now and then I found a moment of peace, a small oasis in between calls and texts, in between Mom’s querulous voice and caregiver check-ins, in between broken nights. But I did not try to plumb the depths of myself. I knew it was not time and I hadn’t the strength to stay safe.

Photo by Christopher Campbell on Unsplash

Summer bloomed fiercely and slowly withered as Mom did, until she was released in August.

She was released, but the work of wrapping up a life went on and on, the majority falling on my brother’s shoulders. He soldiered on. We signed and notarized papers, transferred ownership, sold the house, thought about taxes. I dealt with family jewelry and wrote an obituary, and chose a picture for the local paper.

Autumn came. On Halloween, I thought a year ago today she fell and broke her hip and it all began to end …

Winter came, and passed.

Spring is on the threshold. It feels like my first spring in this new house of ours. And now the ice begins to melt. Now I am not skating on the surface of things because the surface softens and melts, warms into depth and movement, into living water, cleansing and healing. The broken edges, the shards, blunted in the sun before melting away.

Water has ever been my strength and my safety. I take off my skates and float in my depths, my memories weightless, my ghosts drifting quietly, the echoes of the past fading away into peace as I allow them to brush against me, perhaps not for the last time – who knows? I will not be afraid if they visit me again. They are familiar now, and will melt again, as winter melts into spring.

“Ice holds memories … great islands of ice … hold many stories, but they’re just the fragments. Most of the stories are gone.”

James Roberts at Into the Deep Woods

Questions:

  • What signals spring to you?
  • What intense experiences have you had to unpack slowly, over a long period of time?
  • How do you manage your intense feelings?

Leave a comment below!

To read my fiction, serially published free every week, go here:

Simplicity

I’ve been resting in this pause between solstice and the new year. Although I made a conscious choice to set aside everything I could, it was uncomfortable to let this blog lie fallow. On the other hand, I have not been inspired to do much more than manage day-to-day life.

I’m grateful to have moved into new holiday routines after decades of feeling imprisoned by obligation and duty to my fractured family and making Christmas meaningful and fun for my children. Gone are the days of huge, exhausting meals, tight schedules, trying desperately to please everyone at my own expense, spending much of the holidays in the car traveling between homes, and tired, overstimulated children. Not to mention tired, overstimulated me.

Now I focus on Yule, on the deep, introspective peace of winter and long nights, withdrawing into my cozy home. I engage in rituals I love: candles, simple decorating, making a double batch of Spritz cookies with my cookie press to share, and welcoming the return of the light.

Photo by David Monje on Unsplash

This year we had a tropical storm the week before Christmas with high winds and torrential rains that flooded our town and, indeed, the whole state. We were without power for 48 hours. The lack of electric light (or electric anything else) fit in well with Yule, though we got very cold. We were also trapped; every bridge in the area was closed and the Kennebec River, which winds through our town, rose 30 feet, which is 15 feet above flood stage. Between flooding and downed trees, we were unable to leave our immediate neighborhood. Most businesses closed. The ones that stayed open (with generators) quickly ran out of everything. Our neighbors loaned us a butane camp stove so I could heat water for hot drinks.

As soon as the power was restored I ordered a propane camp stove.

Life rolls along, whether I’m posting or not.

This morning, as I lay in bed waking, I heard snow plows in our neighborhood. We’ve had more rain here, and clearly sometime during the night it had changed to snow. As I moved around the kitchen, watching the sky lighten and the snow fall, cooking breakfast, sipping my first cup of tea, enjoying glowing candles, my thoughts drifted.

Impossible to avoid end-of-year lists and reviews and new year resolutions, hopes and fears this time of year. I generally am uninterested. I’m content to let the old year diminish and recede, particularly this one, which was especially difficult personally. I don’t enjoy new year resolutions, mine or anyone else’s. None of us know what the new year will bring and many of us look ahead with some trepidation and anxiety; I don’t need to exacerbate mine by making or consuming predictions. What will come will come and we’ll have to cope with it.

I will be 60 this month. Impossible. Incredible. For the first time in my life, I’m daunted by a birthday. Generally, I hardly notice them. I’m annoyed by my discomfort this year. I’m determined not to focus on it, but I keep seeing it out of the corner of my eye.

I asked myself a question as I moved around the kitchen this morning. If I could have anything for my birthday, if I could make one intention for the year ahead, what would it be?

It’s easier to think about what we don’t want, isn’t it? I reviewed my current challenges and anxieties, watching the pewter sky and the snow becoming less rain and more flakes as the temperature dropped. I flipped the bacon, gave the cats another half a can of food so they would get out from under my feet. The pipes in the radiators creaked and popped as the furnace turned on.

The word ‘simplicity’ came into my mind. I turned it over. I thought about what brings me joy. I thought about candles, reading a good book, the warmth and weight of a cat in my lap. I thought about a cup of hot tea. I thought about music, the rhythm of swimming, being with people I love and trust. Sitting in my comfortable chair with my weighted blanket, just breathing. Peace. Stillness. Light and shadow. Long nights. My warm bed. Hot showers. Solitude. Privacy. I thought about my current laptop background. A perfect illustration of simplicity:

I thought about what I don’t want. The endless complications of being nice, pleasing others, fawning to stave off violence and pain. Clutter. Bright lights, noise, demands. Busyness. Obligation. Duty. Feeling hounded, imprisoned, criticized, judged by myself and others. Too much talk. Racing the clock.

I thought about boundaries. Inconsistent boundaries, badly maintained, easily breached; and strong, smooth, tough boundaries, well-maintained and consistent. Unapologetic.

I thought about the simplicity of ‘No’ and the complications of ‘No’ followed by five minutes of cringing apology and justification, or the inability to say ‘No’ at all.

‘Simplicity’, I decided, named my longing.

When I consider the first 60 years of my life I mostly see the unending labor and anguish of caring for others, the years of trying and trying, as only a woman who loves can understand, to love them all. To please them. To make them happy and healthy. It was complicated. Noisy. Chaotic. Bloody. Painful. Extremely expensive in terms of my own health and happiness.

And frequently thankless. Rarely reciprocated.

That’s what I thought I was for, to live that way. I was taught that was what I was for.

In the last few months I came across a little mantra which has become something like a prayer permanently nestled in my consciousness:

I am enough.
I choose my life.
I trust myself.

Sixty is a nice, round number. How would it be if I chose to begin again, now, with just myself; my own self-care, which is simple and easy? What if I chose to embrace the discomfort and power of maintaining strong, consistent boundaries and let people react to them however they need to, making their feelings none of my business? What if I stopped apologizing for what I need because it’s not what they need or understand or want?

What if I made up my mind to choose the simplest thing, the most direct, honest answer, the clearest communication in any given situation? What if I stood up for myself the way I stand up so readily for others?

Maybe 60 years of responsibility for everyone around me is enough and I could choose to spend the next 60 years (!) being responsible only for myself.

What a relief!

I don’t tell myself living more simply will be easy. It won’t. Boundaries, (I’m never allowed to forget) are invariably heavily challenged and battered by those who have the most to gain by us having none. Maintaining boundaries means conflict, a thing I dread and have always avoided as much as possible. It means emotional manipulation, the most painful (and successful) weapon those close to me can wield against me. It means Failing To Please. It means controlling my natural empathy, focusing it inward rather than outward, being more present with my own internal state rather than that of others.

Simplicity. What a lovely intention.

Photo by Das Sasha on Unsplash

Here’s a deep winter wish for you all:

May You Grow Still Enough

May you grow still enough to hear the small noises earth makes in preparing for the long sleep of winter, so that you yourself may grow calm and grounded deep within.

May you grow still enough to hear the trickling of water seeping into the ground, so that your soul may be softened and healed, and guided in its flow.

May you grow still enough to hear the splintering of starlight in the winter sky and the roar at earth’s fiery core.

May you grow still enough to hear the stir of a single snowflake in the air, so that your inner silence may turn into hushed expectation.

by Brother David Steindl-Rast

Questions:

  • How did you spend your holidays? Did you spend them the way you wanted to or the way you had to?
  • How do you feel about new year’s resolutions?
  • What single word names your deepest longing?
  • In your view, how do self-care and selfishness differ?

Leave a comment below!

To read my fiction, serially published free every week, go here:

 

 

 

Mabon: Balancing Time

Today is Mabon. My calendar informs me it’s my weekend to post on Harvesting Stones. Some weeks I’m all ready to go and need do nothing more than push the publish button. This week these are the first words I’ve written, sitting here on my little porch on Saturday morning watching the clouds tatter before the morning sun.

Mabon, or fall equinox, is the balance point during which the hours of daylight and darkness are equal. It mirrors spring equinox and falls between winter and summer solstice. Fall is my favorite time of year, and this fall I’m in the midst of profound transformation. It’s a harvest season like no other in my life.

Photo by Brigitte Tohm on Unsplash

Sometimes we are so swept up in the tides of life and death we can do nothing but keep breathing. Days fall away from me, hours drift by and disappear without my awareness. I am focused on the next task, and the next. At the end of each day, I cross to-dos, questions, concerns off my lists, make notes for the next days and weeks, and fall into bed before rising at 4:30 or 5:00 to begin again.

In the midst of the chaos, I remember I choose my life. I’m getting better at just stopping.

Stopping.

I have before me a weekend. Mabon, 2023. It will never come again. A hundred tasks to do. A hundred things to worry about. A hundred choices to make.

Mabon is about balance. Action balanced with rest. Complexity balanced with simplicity. Fear balanced with confidence. Work balanced with play. Grief balanced with joy.

The light; the growing season; the summer of hospice, anguished love, extra caregivers, demented phone calls, medication lists, and, finally, my mother’s death, wane. Trees retain their leaves, but summer’s fierce green fades, bronzing, drying. Sedum and chrysanthemums bloom in the garden. A few sunflowers still flower among the ripening seed heads of their fellows.

Mabon. Balance. And I, a creature, a life among so many other lives, what can I say about it? How can I talk about balance when it feels so far from reach? How will I find balance again on the other side of transformation?

What I hold are impressions, vivid moments of mindfulness and sensuality, unexpected emotions, and the determination to cling fast to myself as autumn rip tides carry me where they will. For I am here, alive, curious, creative, awed, grateful, terrified.

Photo by Autumn Mott on Unsplash

I’m rereading Susan Fletcher, a favorite author. I just finished Oystercatchers. On the last page, this: “You’re this: an onion bulb. The glint of a rabbit’s eye. The clicking of a beetle’s legs on a leaf; the leaf’s brown edge; dandelions; a pebble; windfall fruit.”

I read no more; I was crying too hard.

My mother is always with me. She has always been with me. My blood, my bone, my sculptor. Now, her death is with me, too, and her dying. Grief has not come to the front door, which I’ve left ajar in anticipation of its coming. It’s crawled through cracked windows, slipped through old screens long-dead cats tore with their claws. It’s drifted down the chimney, come up through gaps in my old wood floor from the cellar, crept along the copper radiator pipes, cool now, but soon to be warming.

I carry bewildered pain within me, like a ripe nut in its shell. How does it happen that a human being, intelligent, talented, competent, with so much to give, can have no feel for life? How can anyone refuse to engage with the mystery, the glory, the terror, the sweetness, and yes, even the pain of what it means to be alive, to love, to be broken and heal over and over?

Isn’t it strange that I find her in the small delights she herself would never have recognized as sustenance, as miracles? Something in Mom was too blind or too broken or perhaps too frightened to allow life to clasp her in its arms. Something. We could never talk about it. I knew it was there, but she would not reveal even the edges of her true experience.

In the end, as the fogs of dementia surrounded her, she was at last able to say she loved me. I have that, at least. And yet, she was demented … But I choose to believe.

Mabon, then, is the autumn garden. Planting blue and white grape hyacinths in drifts with daffodils under the magnolia so in spring they will bloom and naturalize as the seasons come and go. Shoveling and spreading compost mixed with aged cow manure, rich with earthworms and beetles. Pruning, trimming, prying weeds and grass out of cracks in the sidewalk and driveway. Disturbing our small brown toads as I weed and clean up debris in readiness for the blanketing fallen leaves. Dividing and transplanting. Spider webs jeweled with dew. Chilly mornings and gorgeous afternoons. The smell of my catnip, ecstatically trampled and chewed, no doubt discovered by the neighborhood black cat, Winston by name. Planting a few end-of-season sale perennials from our local greenhouse: lavender, black-eyed Susan, sedum. My garden manicure of dirt ground under my fingernails and into my cuticles, always dry and ragged from so much time in the pool. It won’t scrub away, but it will soak off in the pool during my next lesson. Peeling skin and blisters. Bruised knees.

Photo by Dakota Roos on Unsplash

Mabon is the early morning mist rising from the Kennebec River three or four blocks away. It moves up from the surface of the water, along the dark, early-dawn streets and walkways, enveloping the trees, rising to hide the church spire and then gently dissolving as the sun rises while the crows call and the neighborhood rooster announces the dawn.

Mabon is the taste of Apple Pie Chai (Republic of Tea) with a dollop of half n’ half in it, as delicious as it sounds. It’s scented candles burning in the first hours of my day as I journal, make lists, think about the day ahead. Orange, red, and golden candles – orange and spice, apple and cinnamon, sandalwood. One of my closest friends says sandalwood is a “dirty hippy smell.” The thought makes me smile every time I light it. The apples and cinnamon candle sputters companionably because it has a wooden wick (Book&Reverie candles on Etsy).

Mabon is linen sheets dyed a glorious old gold on my bed, textured, heavy, luxurious. It’s socks and sneakers instead of my Keen sandals. It’s my heavy grey shirt jacket with a Buff bandana or a scarf.

Mabon. The Wheel of the Year turns. Seasons and cycles. These things remain. These things are predictable, comforting. They sustain me.

This year, Mabon is also a blizzard of what feels like endless documents, digital, paper, filed away, stacked on my desk, put into binders, stored on USB sticks. Soon, Mom’s house in Colorado will sell, the requisite paperwork will be filed for tax preparers and other legalities. Printing and scanning, FedEx drop offs, notarizing, will eventually be complete. The business of opening accounts with a new bank, obtaining new cards and checks, changing automatic payments and direct deposits, connecting to other accounts, will be finished. Insurance, retirement accounts, paying off debt – all will be managed. I will create new systems, effective and simple.

This week my nearly 20-year-old Subaru failed to pass inspection. I can’t understand it. The driver’s side door handle still works; I don’t really need the others. It drives. I don’t need AC or an audio system. I can manage without being able to open the back hatch. The heat and defrost work if I put in the fuse, and the battery is good as long as I don’t leave the fuse in when I park it. I know exactly where to bring my fist down on the hood when an ice storm seals it shut and I need to open it and put the fuse back in.

It needs $3000 of work. It’s worth $1100.

I need a new car. More tasks. More paperwork. Insurance. Registration.

Photo by Nathan Dumlao on Unsplash

These things, the documents, the tasks, the paperwork, phone calls, texts, emails, are nothing but the chrysalis of transformation. I know it. I feel stressed and overwhelmed much of the time, frustrated by delays, miscommunications, jumping through legal and bureaucratic hoops. It’s all temporary, though. It will fall away, along with the autumn leaves. The chrysalis will shred in the dark winds of late autumn and winter, this rip tide will release me, and then … something new.

Through it all is my mother. My memories of her. The pain of my love for her. I’ve inherited so much more from her than assets. There is some comfort, some strange, painful comfort, in remembering to pause. To choose. To stop. To be touched, broken open by the small daily beauties and comforts of life. The taste of creamy tea. The scent of sandalwood. The texture of rich soil. The late copper and garnet blooms of mums. The mist rising into the sun’s golden warmth. Most of all, the painful risk of loving friends, family, the world, life.

Look, Mom. See the little toad? Let’s put him here, under the rhododendron. Remind me to buy toad houses.

 

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The Feeling of Dementia

In January, my brother and I traveled to Colorado to transition our mother into memory care.

As some of you know and many can imagine, a journey into dementia is an unsettling one on good days, by which I mean relatively calm days. On bad days, days of panic and confusion, days of anger and restlessness, it’s heartbreaking.

One of the greatest challenges for me is the chaos of my jostling feelings, all mobbed together and struggling for attention. I can’t feel everything at once, and I can’t focus on one thing at a time. One minute I’m entirely relieved because I know she’s in a safe, protected environment being well cared for, which has not been the case for the last ten years. Knowing she was living alone, driving, walking her dogs, and slowly losing her ability to function and manage her own life and I could do nothing about it took a daily toll.

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The next minute empathy and compassion overwhelm me and I’m reminding myself to maintain boundaries. She is not me. I am not her. My attention needs to be on taking care of my own feelings. If I could have effectively helped and supported her, I would have started doing it when I was five years old. I never found a way because there is no way.

Then I’m angry. Angry because I tried to avoid this particular outcome. Angry because she wouldn’t help herself when she had the ability to. Angry because I’m still in the position of parenting and taking care of my parent, which has always been the case. Angry about her suffering and confusion, and mine.

At the end of every conversation we have on the phone, I tell her I love her. It’s true. I have always loved her, but was not allowed to say so. She would ignore such a statement, or dispute it. She says it back to me now. It always makes me a little bit mad. It was a thing she would not say outright before. She’d sign herself “Love, Mom,” but she wouldn’t say it. She’s not a person who offers or accepts any kind of touch. Does she really love me, or is she merely participating in the familiar ritual of the exchange? Did she feel it all along but couldn’t say it?

Even before her dementia onset, Mom wouldn’t have answered these questions. I will never know.

I’m also sad. It’s not a sobbing, tearing grief, but a gentle, diffuse one, like watching a teabag steep in hot water and gradually turn it into tea. I don’t feel it all the time. There’s resignation in it, and acceptance, and surrender.

Mom is receiving palliative care under a local hospice organization. They recommended a book to me, titled The 36-Hour Day, by Mace and Rabins. I bought a copy. It was hard to read because it stirred up uncomfortable feelings, but it’s also a goldmine of information, including the latest research and standards for dementia care. It’s enormously validating. I read about specific behaviors and the stages of dementia and realize I have been struggling with Mom’s gradual disintegration for years. Nobody else saw it, so I was alone with my fears and concerns, but I knew she was slipping and I suspected this time was coming.

What I was most hoping for from the book was a script for dealing with difficult questions and conversations. I have some professional experience with dementia and am comfortable with refraining from using logic or trying to bring anyone back to reality. Mom has always believed entirely in her narratives, which often were distorted, paranoid, and inaccurate, so I have a long and painful history of managing her stories and beliefs. However, now the briefest conversation is fraught with pitfalls I don’t know how to respond to or address. I spend a lot of time on pause, frantically trying to figure out the best way to engage with her.

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The book didn’t give me a script, per se. What it gave me was a simple strategy for everything: reflect and validate feelings. Not the stories (thoughts), but the feelings. Emotional intelligence strikes again.

This was good news for me because I’m highly emotionally intelligent, even in this difficult personal context. I know how to recognize, name, and manage feelings. On the other hand, it seems like so little to offer. It’s hard to provide comfort in the context of dementia. Language feels pointless. Nonverbal communication is useless over a long distance and, in this case, in person. Mom has flinched away from me too many times for me to even think about touching her. On the phone, all I have is language. Following my impulse to reassure, to explain, to provide some kind of structure, only makes things worse for both of us. I measure my effectiveness by the level of her distress, which is eerily like measuring my effectiveness by the degree to which I can please her. Even that may not be accurate. Mom’s distress has always been extreme in the face of boundaries, limitations, the word “no,” and any questioning of her particular narratives and beliefs. It’s a personality trait having nothing to do with me personally. The mere fact of her feeling confined (which is accurate) may be the root of her distress rather than anything I’m saying or doing. Or not saying or not doing.

It occurs to me feelings live inside the just-born infant. Maybe before that. Certainly, we experience feelings long before we master language. I’m realizing intellect, logic, language, can all fall away at the end of life, too, but the feelings remain. I assume our need to be heard and validated remains.

Conversation with Mom is like wandering blind through a meadow filled with rabbit holes. Dementia is at once simple and extremely complicated. I never know how she will be or what she will say next. Sometimes she sounds down and depressed. Sometimes cheerful. Sometimes calm. Once she even told me she was “content,” a word I’ve never associated with her before. Sometimes she’s anxious, sometimes angry, sometimes groggy and hardly responsive.

When we talk, I work to set aside (temporarily) my own feelings, thoughts, memories, expectations, and predictions. I ask her how she is and listen to her response, looking for the feelings. When she tells me she needs to leave there because “everybody steals,” I sidestep the stealing accusations and acknowledge it must be an uncomfortable and discouraging way to live, and I can understand why she doesn’t like it. She perseverates on this theme off and on, and I enlarge on how difficult the feeling of losing things is, how unsettling to not be able to find our possessions. After all, she’s lost her whole previous life. Her feeling of loss, of things missing, is based in reality. On the other hand, her paranoia and fear of people (including me) stealing money from her was in place long before her dementia. I was never able to persuade her they did not reflect reality. I certainly can’t do it now.

Reflecting and validating her feelings back to her feels inadequate. It even feels condescending. But there’s nothing else I can do, nothing else to say. Witnessing her feelings is all I have left.

And, after all, maybe that’s a lot. We’re not very skilled with feelings in this culture. It’s not easy to find someone who will just listen without trying to fix or solve. Perhaps great healing lies in being heard with nothing added. I hope so.

Another constant theme is one of buying a car and going shopping when we visit. When I ask her what she needs, she can’t tell me. She needs “things.” When I ask her if she’s started a list, she never has. We are not sure she can read or write anymore. I realized when we went out to move her and worked in her house she’s a shopper. She has enough clothing for three women. Her closets were filled with shoes, both old and worn and newer. She had six or seven open bottles and jars of the same products. Her cupboards were packed with supplements and vitamins for both herself and the animals, many of them outdated. As her confusion grew, it appears she self-soothed by shopping and receiving packages in the mail. So, we talk about how much fun it is to take a day and shop for this, for that. We talk about having new things, buying special gifts for ourselves. She doesn’t want to make a list and have someone else get her what she needs. She wants to go on her own and play, buy what she wants, choose what she wants. She wants to feel free, independent, and empowered to give herself that.

She cannot understand that’s no longer possible. Even if she could, the feeling of wanting what she once had would likely persist. It breaks my heart.

Photo by Gemma Chua Tran on Unsplash

I have feelings, too. I turn to journaling, to writing. I’ve tried without success to find support groups in my area; then I found a mental health professional experienced in family trauma to speak with. I talk with Mom’s hospice team regularly; having worked for hospice, I know they want to support the whole family system. I extend to myself all the gentleness, support, and patience I extend to Mom. I hold my thoughts loosely and hug my feelings. They need comfort. They need expression. I think about boundaries and regulate my empathy. I’m newly appreciative of my own freedom and independence. I look for reasons to laugh, reasons to smile. I look for ways to connect to others. I intend to learn to receive as well as I give.

As I write this, an exuberant spring wind blows outside, pushing snow off roofs, tangling our wind chimes, shaking the lilac branches with their new, hard buds. One of the cats is stretched out on my desk in the sun. My desk calendar was in his way, so he kicked it off with his back feet. A glass paperweight pins down a card for Mom, the envelope addressed and stamped. Every Monday I put a card in the mail for her. I do it for me. She does not acknowledge them or remember receiving them. I hope they’re all displayed in her room, but I don’t know. I’m not sure she can read them. I imagine a staff person or hospice team member reading them to her. I’m not sure she can connect them with me at all. But it makes me feel better to make the gesture, and I enjoy picking out cards I think she’ll like. I’ll write a couple of lines about the weather, about the moment, about spring. I’ll sign it with the word love. I’ll put it in the mailbox and raise the flag, and the mail carrier will take it in an hour or so.

Feelings are pure. Feelings are simple. It’s our thoughts about our feelings that fester, tangle, entrap us. I want to soothe uncomfortable feelings, make the pain stop, dry the tears, turn aside the rage. All my life it’s been my role to take care of Mom, fix whatever was going wrong. I still feel her emotional dependence. I still feel the responsibility to solve every problem for her.

But Mom has traveled now to a place I can’t go and she can’t come back from. She can’t follow me, clutching at my clothing, needing, wanting, pleading, demanding, rejecting. I can’t walk beside her in a way she recognizes. We have separated. I am relieved. I am absolved. I grieve for her anguish. Witnessing her feelings without taking action to assuage them is perhaps the hardest thing I’ve ever done in a lifetime of hard things in caring for her.

But I cannot fix this. Neither of us can go back. There’s only feeling our way forward.

Questions:

  • What has been you experience, if any, with dementia in a loved one or family member?
  • What are your thoughts and feelings about hospice care?
  • What’s the hardest thing for you in supporting an elderly loved one?
  • Do you worry about developing dementia yourself? Have you made a plan?

To read my fiction, serially published free every week, go here: